"For I know the plans I have for you", declares the Lord. "Plans to prosper you and not to harm you, plans to give you hope and a future".
Jeremiah 29:11
Monday we had labs drawn. It was SO early, as usual. We rode in pitch black until we were practically in Austin. Of course Rowan was awake and wanting to be entertained... She's so like me. I can rarely go back to sleep after I'm awake, and I can't sleep in the car.
We had a new guy draw labs. He passed with flying colors. Rowan sat in my lap, like a big girl and watched the needle go in without a word. So well behaved- what a dream patient.
Our reward was going to meet baby Nathalee!
So beautiful and precious!
Later that night at dinner we were practicing our Halloween faces ;) Actually, she just didn't like the flash!
More disturbing flash:
This one, I have no excuse:
She's crazy:)
And just loooooves to make a mess!
For the past 4 days Rowan has only been taking prograf! Back to one medicine:) Her blood pressure is coming down on it's own after stopping the steroids.
Plan is no labs until November 9th! Amen! Another round of IVIG then too...
Chance and I were looking through our phones and couldn't believe how big Rowan was while she was on high dose steroids.
I mean, we knew she was big... But looking back at the pictures we just didn't realize how big!
End of July:
August:
Poor darling.
Here's today:
She has a neck again!
Girlfriend weighs 9.3kg (20.5lbs) now. When we left the hospital back in July she was 10.2kg (22.4lbs). That means over three months she's lost about 2lbs!
It's funny how we go up sizes and then come down sizes.... Her closet is a revolving door. She can still wear some of the clothes from this time last year! (what 6month old and 16month old can share clothes?!)
Either way she's precious, but it sure does feel good to have her looking back to normal and healthy!
Rowan had her IVIG infusion yesterday. The first two have been in Houston, this one was in Austin. Lot of differences, lot of similarities...
Ro did some walking while we waited.
And waited...
And waited.
The IV team started her IV with no problems-YaY!
Rowan didn't even cry. This big girl is becoming immune to all these needles...
Afterwards, she was all smiles with daddy:
Practicing our "moo"
Before the IVIG, Rowan had a pentamidine treatment. This is a breathing treatment of antibiotic she takes monthly for a full year after transplant.... Only ONE left! (November 29th is Ro's transplantiversary!)
They had us sit in a big plastic tent... It was a little weird. We've never had to do that before.
The infusion started around 4pm-ish, so we finished up around 7pm. Rowan was a rock-star! The treatment went without a problem.
It was an extremely long day: Rowan didn't take her naps (because we weren't in her room/bed), and she's cutting more molars (ugh!).
But overall, her labs looked great, and we survived, yet again!
Wednesday night we got the medication taken care of...
So Thursday morning we woke up eeeeaaaarrrrrlllllyyyy to have Rowan's labs drawn.
Only, when I went to wake her up (yes- wake HER up, it was that early) she had throw up all over. No time to bathe, so we just changed clothes and drove to Austin, smelly and all.
Here is some disgusting dried bit in her hair... Groooosss!
But labs went so well! One stick, and rowan didn't even cry!
When we got back home, a bath was the first thing we did.
So, for the great news: •Ro's labs look wonderful! •NO more prednisone, prevacid, or fluconizole!!!! (yes, folks, that's 3 gone) •Blood pressure is not so high anymore- we are doing little to no medication for that AND- She's walking!!! Check it out:)
We have several videos now, and Rowan is so proud of herself!
We attempted a football game on Friday night, but 7oclock came, and Ro turned into a pumpkin. We had to leave by 7:05.
This morning we completed another 5K- Go Ro! :)
Girlfriend is so happy and energetic- what a wonderful squish ball of love we have! Thank you God for our angel donor and a little bit cooler weather. (it's made our walks So much more enjoyable!)
