Day 18 Post-Transplant

Look at me! Wearing my own Christmas pj's


Today has been a wonderful day for miss Rowan Ruth!

1. Wearing our own clothes!!!
2. Eating more and more...
3. Transfer orders to the step-down.... But they are full, so we get to stay in icu. This may be mom and dad's last night to sleep a little:) When she is not in icu, we sleep in the room with Ro.

We have waited so long for this day to come...

Still on medication for withdrawals, but we will start weaning that off again.

We are filled with so much joy, but our hearts are hurting too. Our little friend fought a very great battle and went to see Jesus last night. I have never felt such a connection to any stranger as I did with his mom. There was some type of unspoken desperation that I could feel every day during the two weeks I saw her. That desperation for a liver to help your baby live is a powerful tie. Waiting is often so difficult, and there was such hope for him when they said a liver was available. Unfortunately, our maker had other plans and needed him as an angel. Maybe it's comforting for her to have both of her children together- in Heaven.

Again, it just makes us hold on to our little girl that much tighter with thanks and praise. She has a great purpose here, and her story is just beginning. Rowan needs to live and thrive for all of those we have met along the way who can't. We will never forget them.