This was the board after our conference with 13 doctors!
Rowan's clot, anemia, and declining status have put her into a pickle, so we had a meeting of all the specialties to make sure we were on the same page and to do a little brainstorming.
Still on the steroids, but starting IVIG. (You guys are just gonna have to look this one up if you are interested... I'm too tired to explain, and it's a little complicated.)
Hopefully, Rowan can hang on. Her body is wearing down and there's been talk of intubation.
Heparin- for clot.
Clindamycin- maybe infection? No fever, negative cultures, but increase heart rate and respirations.
Methylprednisone- the steroids.
Blood- Rowan has none of her own red blood cells anymore!!! She's had THAT many transfusions!!!
Protonix- prevent stomach ulcers.
High flow oxygen.
IVIG.
Blessed to have a very smart healthcare team and our education as nurses!
This is complicated!!!
My entire family is praying for you guys. Auntie Lisa sent an email to everyone! Hope things start to turn around!! We love you guys!
ReplyDeleteThinking and praying for you guys!!!! I really hope the IVIG helps. Rowan is SO strong and I know she will fight this one out! We love yall!!! I will be up there Monday and would love to stop by if that's okay. I'll text first to make sure it's an okay time.
ReplyDeletePraying for all of you. God is in control and He is always right. Keep your eyes on Him. He'll never make a mistake. We love ya'll. If you need us please call.
ReplyDeleteOh you guys!!
ReplyDeleteWe are praying hard that things start to improve.
Praying for improved health and a quick recovery for your sweet girl, and also strength and comfort for you and Chance!
ReplyDeleteWe love you guys so much. You are in the best of hands and Rowan has been blessed with the best parents. We'll keep praying and spread the word. Love you!
ReplyDelete