Thanks, Steroids!

The large dose of steroids seems to be working.

Rowan's body has stopped attacking and destroying her red blood cells.

They have set a goal of 6 for her hemoglobin. She was 6.2-6.9 all day today.

After we make sure her body is not going to start attacking again, then her new goal will be higher.

The next step is to wean down on the steroids and see if her body continues with it's good behavior.

We may be on a little rollercoaster when that happens, but hopefully we have a smooth transition. If not, too complicated for the blog right now;)

Gosh, aren't autoimmune issues fun?!

She has been so much more awake and active today- yay!



Gatorade!






Big yawn






No more oxygen today.
No more antibiotics.

So far since Tuesday she has been poked about 25 times :/

Because they still need blood, and it is not easy to get it from her, tomorrow they are going to place a PICC line.

I have been asking for one since DAY 1- but what do I know?
I'm only the mom, well adversed in icu care because I'm an icu nurse, who happens to understand how this rodeo works, but I guess that's not enough. Plus I know my Ro baby. Anyway- she will get the picc tomorrow and our lives will be better:)

In all of the hullabaloo I haven't mentioned her liver!
It's seriously a rock star!

Her liver numbers couldn't be better!
Amen!