Day 52- Tube REplacement

Good morning clogged feeding tube...

Not the best way to start a day.

Medications were due, so Rowan had to take them by mouth. She wasn't thrilled about this either...

We were able to get into the Interventional Radiology department at Dell Children's Hospital relatively quickly. We showed up at 12:15 and were scheduled to have the tube replaced at 1:00, but as always, there was an issue, so we got things started around 1:30.

Rowan was a great sport about waiting. She and Judy (grandma name is still to be determined) watched the fish and played.

The actual procedure itself wasn't too terribly bad. Of course I know it was painful and she cried the entire time. First, they velcro strapped Rowan to a wood plank. Then after removing the clogged tube, they inserted a new one. This was all done with the guidance of fluoroscopy (a "moving x-ray" picture where they can see the tube as it moves in place.)

Then, we had to wait for tape to secure it in place. And wait. And wait. Rowan screamed the whole time because she was still strapped to that board.

The trip ride back home, she slept. It was an exhausting afternoon.

At home, her tooth started to give her grief. Poor kid can't get a break. We've tried to get her to suck on cool rags, teethers, used the teething tablets. We've given her Tylenol, and tried the baby orajel.

Basically, we've quickly figured out that teething is no fun! I'm trying to decide which is worse- that or the methadone withdrawals. Thank goodness those are over! We are officially no longer a drug addict.

We ended the night having fun in the tub. I saw a few smiles... It's so nice that she likes bath time again.







Tomorrow Rowan goes to occupational therapy. Back to Dell Childrens bright and early....