They stopped the infusion, and she recovered well.
Because this is a chemotherapy type drug, we will wait for a week before trying again. They gave Rowan benadryl and tylenol before the infusion this time and they will continue that again the next go round, but not run the infusion so quickly.
It could take 3-5 days before seeing results, but maybe because she received about 1/2 of her dose, there will be some change in her numbers.
Her reticulocyte count is 15 today. We cannot get off IV steroids and out of the hospital until it is around 5.
The days here have been great! Rowan has been happy and playful. Today Tara painted her toenails!
I called Chance and he said in a sad, my girl is getting big kind of voice "but my baby is too young to have her nails painted"
They look so cute and she's already received tons of compliments:)
Buuuuut. The nights have been terrible! I'm calling it roid rage, because she wakes up screaming... We've tried milk, Tylenol, and gas medicine, but nothing seems to help. Eventually, she takes her bottle and is off to bed for a few hours before it starts again.
Maybe tonight will be different....
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