Home sweet hotel is fabulous!
Getting all of Rowan's medications was an ordeal-- but that's taken care of now, until we need a refill.
Med Count: remember she onlytook prograf before being admitted
1. Prograf
2. Prednisone
3. Amlodipine
4. Lovenox
5. Prevacid
6. Fluconizole
7. Folic Acid
She wasn't quite as happy to leave the hospital as I had imagined.... But we did wake her up from napping to go-
Our random junk cart... I hate coming home with stuff we don't need/want... It feels so wasteful.
It was all smiles at our 3pm celebratory lunch/dinner to avoid crowds. Rowan is the most immune supressed she has been in her life, so it's very important she's not around large crowds or anyone sick.
Some "essentials" for our temporary pad:)
Wowza! Check out that double chin! Those steroids have gone straight to her face! Many people comment: oh look at those cheeks! We've never heard that before now.
A real live bath! All taped and bandaged to protect our PICC and insuflon in her leg.
Thank goodness!!! She was starting to smell rather unsavory.
However, after the bath, Rowan pulled out her insuflon catheter in her leg- again... So we had to poke her for the lovenox tonight.
On the positive side, the needle and amount of medication are much smaller than that in the hospital.
Maybe tomorrow we can find the numbing spray/cream....
I have a feeling she's going to continue pulling out the catheter:/
Thank you so much for your prayers and love!!! We feel so fortunate to have so much love and support!
No comments:
Post a Comment