Thank you- We are home.

The last few days Rowan spent in the hospital were horrendous. They weaned the methadone too quickly and she had terrible withdrawals. Sunday was so bad I couldn't put her down, didn't get to take a shower, and made Chance switch his schedule at work to come as reinforcement. None of us slept, but we are still alive now:)
Monday brought a new attending with a different philosophy and we went back up on the methadone to help out with all of the irritability. And it did help- Ro is still on the methadone at home and we are just decreasing it very slowly.
Tuesday we were discharged from the hospital. Seth came to town and he and Chance moved 4 trolley loads of Rowan's stuff into our hotel. (We couldn't stay without her bouncer, mat, highchair, two suitcases full of clothes, enough toys to fill Santa's sleigh, her bathtub, and the many miscellaneous items for all of her medical needs)
Wednesday, yes the following day, we had a clinic visit back at the hospital. Labs were drawn, and we met with our specialist dr. Himes. He said go home! No need for our planned stay at the hotel- just go home! An amazing blessing on our 3rd wedding anniversay.
Chance had already gone back to work Tuesday night, so Seth then got to take all 4 loads of hotel items back to the cars. We had already arranged for tube feeding supplies to be sent to the hotel, so we waited for them to arrive as well. Ro had a pretty good time in the hotel, but we were all ready to be home!
Thursday morning we hit the road- and Rowan slept almost the entire time... Another small miracle, since I was driving her all by myself! She usually requires company in the back seat, or she feels too lonely and then gets fussy...
As I was driving, I began to have flashbacks of the last time we were in the car alone together. We were on our way to Houston- sick baby, bad liver. We met Chance in Brenham that time on our way to the hospital. Looking back now was somewhat like an out of body experience. Now that she is well and healthy, it is so easy to see how close to death she was. That car ride was so scary, yet at the time Chance and I both were so determined and had our eyes fixed on exactly what needed to happen. I wasn't scared, I wasn't panicked, just on a mission to save my baby. The months in the hospital also came back like a flood. All of the bad times, frustrations, watching Rowan stop breathing and go lifeless, being intubated, and on and on...she was so close to dying, but I never had that fear. As I have said before she has always been a fighter. She never quit, and she still doesn't. I was with her the entire time and God was with me. He protected our whole family and gave us such peace. We knew that eventually she would be home in our arms, it just took some time. And during that time we met a lot of people, shook a lot of hands, heard a lot of sad stories, and a lot of happy ones too. We watched Thanksgiving, Christmas, and New Years pass us by while we waited. Chance drove back and forth tirelessly working full time. All of our family and friends made countless trips to see us, paid a million dollars in parking fees, ordered so much food, and gave so much support. We couldn't have done it with you! The unfortunate part of our hospitalization was seeing other families in similar situations go through this alone. It just reminds us how blessed we truly are.
Rowan spent 71 days in the hospital between Austin and Houston. I can't tell you how nice it is to just eat a peanut butter and jelly sandwich, hang out as a family, and have a home full of love.

She is on continuous feeding through her tube, off for only 2hours per day. But she has started eating more on her own so soon that break will become longer and longer. She has 11 medications to take, but that won't change any time soon.
All that matters is Rowan is alive, healthy and home- Amen! She is doing so amazingly well!!!

We go back on Wednesday for clinic again.








Thank you again for all of your love, prayers, and support!