Homeward Bound

Thursday morning we were all geared up and ready to Go!
So were our GI drs... they showed up at 0830 to discharge us.
We waited until 3pm for our hematology drs, but they never arrived. I was really hoping to speak with them, as we were there for a hematology issue, but regardless it was better to be discharged. So we settled for the update via GI.

Her hemoglobin was 10.5 and reticulocytes were 9! Getting better:)
AND even better: they decreased the prednisone!!

Bless sweet RoBaby's heart, her coordinator said she was "unrecognizable" due to her fat face.
Hopefully as we decrease the prednisone, fat face will decrease too...
We increased her amlodipine (blood pressure medicine) dose because her bp is still too high. And again- decrease the prednisone, decrease this med and eventually she won't need it anymore.

We headed to the hotel listening to a babbling Ro the whole way. She "talked" so much, she wouldn't go to sleep!

I threw our yacker (is that a word?) in between her momma and daddy and we enjoyed the king size bed- until 5am...

When we all woke up in pee bed:/
Rowan eats so much still due to her increased appetite (prednisone) that I've had to dilute all of her formula by half. So- she's been drinking a lot of extra water... Which ended up on the sheets, pjs, and the comforter!
Figures- the first time she sleeps with us...

Today daddy took Ro for follow up labs today. Her hemoglobin today was 11 and the retic 8! Woo Hoo!

The car ride home was awesome! She slept nearly the entire trip. Then woke up for a snack:



When we got home she celebrated with some Oreos:






And then we went to walk it off:


Girlfriend has been SO happy! Life is wonderful when you feel good.

Thank you so very much for your thoughts and prayers! Without support we wouldn't have survived.

We go back to Houston tuesday night and will be readmitted on Wednesday for the final (I hope) rituximab treatment.

Then discharged on Thursday again if everything goes well.

Until then, home sweet HOME!