No less than one hour after I posted "day 47- piece of cake", it turned into a plate of misery.
Yesterday Rowan's methadone dose was scheduled to be decreased. (This is the medication to prevent her from having withdrawals from all of the iv drugs she was on in the hospital. But, by decreasing the methadone she can have withdrawals from that too.)
Last night it got ugly.
She had diarrhea, fussiness, sweating, and was unable to sleep- literally all night.
Chance lucked out again because he had work today, so we tried to let him sleep as much as possible.
To top it off, she threw up again because she was so agitated, and that just made it all stinky and even worse.
I made an executive nursing decision and gave her an increased amount of her morning dose. And I gave it early:)
Finally we were able to get a few hours of sleep.
One thing I did learn:
Rowan is too big for her swing. The straps will not fasten.
(I was desperate for anything to make her more comfortable)
But we can just pack that guy up. I'm kind of happy- it took up a lot of room!
Random note-
Before transplant, bile was not able to be released to help breakdown food. This resulted in Rowan's stool being very pale and rarely ever stinky. Now that we have bile flowing and are starting to eat some solids, there are some very foul odors coming from her room...
Our washing machine has been in constant motion as a result!
I hope things get better. We really hope to see Rowan Tuesday but will understand if it's not possible:( when you all are up to it we d like tohost a luncheon for ms Rowan to welcome her back & celebrate her recovery!
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