Rowan is doing remarkably well taking her medicine and drinking over 20ounces per day.
And rolling over is now her new favorite pastime activity. Woo Hoo!
Today we skipped out on therapy this morning because the roads were too messy and dangerous for our precious cargo.
Here are some pictures of our Texas snow.
It was a little bright :D
And a little relaxing to finish off the night-
Another nurse who works at Brackenridge had a child born with biliary atresia a month after Rowan. He just recently had a transplant as well at Texas Children's in Houston. His mom and I have shared lots of stories and although every child is unique, our stories are so familiar. Getting lost in blogs and postings of other families whose children have BA is so interesting as well. I read that Rowan is not the only one who had green gelatin balls in her poop before her transplant:o
It is also so upsetting to hear/read about the kids who have not survived this terrible disease. Rowan is one of 300 children born every year with biliary atresia and it is so unfortunate that we still do not know a definite cause or cure other than transplant. How brave these kids are!
Every day we hug our baby girl so tightly and thank God that it was His will for her to receive a new liver.
We have not found the words to express our gratitude in a letter to our angel donor's family. When we go to Houston for our next check up February 16th, we will have the letter finished to give to our coordinator. She will then give it to our donor family. It is our sincere hope that they would want to meet Rowan.
Their daughter is living and thriving through her now!
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