TCH news!

Yesterday afternoon we made the trip to Houston for a check-up among other things.
Rowan did great in the car.

We opted for an off- hour lunch in Brenham.






Ro enjoyed the people watching... From a distance!






We packed up the Pack-n-Play because we are not the cosleeping type.
Ro slept from 9-4:30am. Annnnd, if it weren't for the hotel, we probably would have made it all night.

So:
Busiest. Day. Ever.

0830- labs
0945- our appointment with our favorite Dr. Himes. (GI/Liver)
1030- another round of labs
1100-pentamidine breathing treatment
1300 which turned into waiting until 1400- ultrasound of Rowan's arm where her clot was







Name band removal.






Elevator waiting...





More.





Even more. Three full elevators before we could squeeze into one.






Again- more waiting. Book reading.











The Results:
•Prograf level (anti-rejection) too high. We are decreasing her dose.
•ALT (one of your liver enzymes) a little high-120's. 30 would be better. Rowan has never had any problems or issues with thus before. Nothing major at this point, but something to watch on the radar. It could mean that she has some type of infection brewing, but so far we don't see it. We will just pray that it will be all back to normal at our next check!
•Hypoimmunoglobulinemia.... what?! Basically it's another kinda complicated term meaning Rowan is extremely immune suppressed. Our hematologist is discussing if Ro needs some IVIG treatments. She had this before the rituximab treatments... So it's different.
•The clot is gone! Maybe some small remnants left, but essentially free and clear. We are going to continue the lovenox shots for a full course of 3 months just to make sure there isn't any recurrence. (Math: 180 shots :( not including all of the lab draws and IV starts since June 1)
•No more folic acid!
•steroids are only once a day now!






puppet show in the lobby.





Sleepy!





So sleepy...


Rowan did remarkably well. She didn't really fuss or cry unless being poked.
SO proud of her!